On November 13, 2010 I gladly became the primary caregiver of my mother. She has Lewy Body Dementia, the second most common memory loss condition after Alzhiemers. I knew nothing about Lewy Body Dementia until I brought Mom to Indiana to live with me. My mother is a resident at the Waters of Covington, a rehabilitation center near our home. I would like to have her live with us but her care is more then one person can provide. The staff at the Waters fell in love with Mom immediately. She may be losing her memory and her ability to care for herself but she hasn't lost her sense of humor or her gentle grace. This blog is meant to be a journal of our days together.



On May 15, 2011 My Mother peacefully and fearlessly passed into the here after. Now I journey alone, yet not alone. I have a lifetime of memories.




Tuesday, March 8, 2011

One Way Doors

This morning I was thinking, praying about Mom. In the beginning I think Mom refused to do certain things because it kept her kids close. She would taunt us with getting out of her wheelchair and walking across the room when we told her she couldn't live on her own anymore because she couldn't walk. She would eat everything on her plate when I complained that she wasn't eating enough. She would get angry when she didn't get things her way.

Dementia is like a series of one way doors. A person can open the door. They can even stand inside of the door and hold the door open for awhile. But eventually, that door will shut and when it shuts it is locked never to be opened again. When the door locks shut that person looses a part of themselves. They have to move forward.

At first the doors are spaced far enough apart that the person can adjust to what they have lost. They even learn new skills to compensate for their loss. But eventually, the doors come closer and closer. Until in the end the doors open into each other and the losses come continually.

I don't know if Mom made decisions that made her "get" dementia. I kind of think that dementia just happens. But, I do know that there were times that she made choices that there was no returning from. I KNOW that at times she has regretted her choices. I know I do.

I have said before, I feel cheated. We talked about this time in her life. She and I made plans. I would ask if she wanted to come and she would say no -- wait. But she waited too long. We won't be doing any of the things we talked about.

Now it is my job to see that she is cared for until she dies, to bury her, to miss her. The thing is, I miss her now. In essense she has died already. Dementia does not play fair.

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